The ASSET Final Event was held in Rome, on October 30-31, to present all the main outcomes of the project. The event was targeted to a selected audience of EU stakeholders and policy makers and its aim was to enhance advocacy and intersectoral approach in a multisetting scenario applied to fostering preparedness and response toward Public Health Emergency of International Concern (PHEIC), like epidemics and even pandemics. In conjunction with the conference, a brokerage event also took place where coordinators of other H2020 projects with a focus on similar challenges were able to present themselves and show their expertise.
We are going to face important challenges in public health and we need to improve the collaboration between scientists and policy-makers. Walter Ricciardi, President of the Italian National Institute of Health, explains why science-in-society is not just a slogan but a key perspective for citizens, scientists, healthcare workers and politicians.
EUPATI, European Patients’ Academy on Therapeutic Innovation, is a patient-led initiative that uses training courses, educational material and an online public library for empowering patients to engage more effectively in the development and approval of new treatments and become true partners in pharmaceutical research and development. Filippo Buccella, chairman of the Italian Liaison Team explains to ASSET how this initiative can involve healthy citizens as well, improving preparedness to infectious outbreaks and other crises.
The internet and social media era is both a great and a hard time to be an empowered patient or citizen. Every day everyone is overwhelmed by information, but also by misinformation. Discerning between the two is not so easy, according to Dennis Costello, Web Communications Senior Manager & RareConnect Leader at EURORDIS (Rare Diseases Europe). Best practices should be adopted by creators of contents and technical tools can further help in selecting them, but patients’ and consumers’ associations have a leading role in this, guiding the public so that they can make better decisions for themselves and their family.
The growing role of Big Data in medicine raises an ethical issue for Responsible Research and Innovation: what about privacy and a possible misuse of such information? During “Shaping the Future of Pediatrics” congress in Rome, ASSET met Alberto Tozzi, Research area coordinator and Head of Digital Medicine and Telemedicine Unit at Ospedale Pediatrico Bambino Gesù, Rome. He suggests that technical solutions can help, but they are not enough, without a cooperation among all the actors (patients, family, hospital, authorities, and so on).
Mandatory vaccinations for both healthcare workers and the public can obtain a rapid improvement in immunization rates, but in the end have high cost, especially in term of litigation. The same results can be achieved putting resources into better organization and communication programs. This is the opinion of Darina O’Flanagan, previous Director of Health Protection Surveillance Centre Ireland and a member of the Advisory Forum of the European Centre for Disease Control since its inception in 2005 up to 2016. She was also one of the founder partners of the European Vaccine Network VENICE and is participating to Pandem project, on behalf of the WHO Regional Office for Europe.
Most emerging diseases come from animals (zoonosis). Therefore, surveillance needs to keep an eye on viruses and other microorganisms that could be transmitted to humans, acquiring the capability to spread among people. Ilaria Capua, director of the One Health Excellence Centre at the Emerging Pathogens Institute of the University of Florida, USA, recommends not letting our guard down.
Ilaria Capua, as director of the One Health Excellence Centre at the Emerging Pathogens Institute of the University of Florida, USA, is very busy in coordinating interdisciplinary research, facing the epidemic of zika virus disease spreading in South America and the Caribbean and reaching Florida. Scientists are testing new diagnostic tests and working on vaccines, but the risk of serious birth defects in the offspring of infected pregnant women calls also for responsible procreative choices, involving lawmakers, governments and religious leaders as well.
On July 30th, the Verbier Festival, one of the most prestigious music festival in Europe, hosted “Concerto for Piano and science”, a public workshop organized in collaboration with the ASSET project.
An increasing perception of the importance of gender differences is moving scientists to study these aspects in the different branches of medicine. In immunology, for example, a new awareness is emerging that women and men’s defences do not react to infections and vaccines in the same way. Katie Flanagan, senior lecturer of the Department of Immunology at Monash University, in Melbourne, Australia, tells ASSET what is the state-of-the-art knowledge and evidence in this field so far.
