Hard to reach groups in public health

There are a number of groups that are especially vulnerable in terms of susceptibility to influenza and barriers to accessing vaccinations. This may lead to larger problems in case of a pandemic; for example, in the H1N1 2009 outbreak in Australia, indigenous Australians, a hard to reach group, were overrepresented in rates of hospitalisation (Seale et al 2010). Hard to reach groups may have adverse health outcomes, and the complex interplay of gender and social and economic marginalisation makes this a particular issue for women (Davidson et al 2011). There are a number of minority groups in society which have adverse health outcomes and where women are particularly affected, such as the Roma community, Irish Travellers, isolated immigrant communities, and those in lower socioeconomic groups. Gender is one of the most critical variables in terms of health outcomes; women in hard to reach groups are therefore particularly marginalised. For example, older people are more likely to be poor than other groups, and women are more likely to be poor than men (Davidson et al 2011).

There are approximately 2.8 million Roma across the EU (Fundación Secretariado Gitano Health Area 2009). The Roma have a disproportionate burden of communicable diseases, which is linked to their overall living conditions, health inequalities, health perceptions and behaviours, and ingrained discrimination (ECDC 2011). The social exclusion and deprivation in which many Roma live contributes to under-vaccination or a complete lack of vaccinations, in a population which is already at disproportionate risk from an illness such as influenza.

One study found that 28% of Roma children in the EU do not follow any child vaccination programme – the figure is as low as 2.6% in the Czech Republic but a massive 45.7% in Romania, which also has the highest population of Roma at 1, 050,000 (Fundación Secretariado Gitano Health Area 2009). Among obstacles noted regarding Roma health prevention was negative attitude and mistrust between Roma and public institutions, low health literacy and poor access to health information, poor understanding of the risks of infectious diseases, and negative perceptions towards Roma from healthcare staff (ECDC 2011).

For Roma women, this difficult situation is even worse, as they are more likely to experience social exclusion than Roma men. They suffer the added disadvantages of limited access to education, employment, health services and social services, and are discriminated against on the basis of both ethnicity and gender (European Commission 2010). The Traveller community in Ireland is another example of a hard to reach group. Compared to the general population, Travellers have a considerably higher mortality in all ages, both male and female. Travellers have excess cardiovascular morbidity, which puts them in the risk zone for influenza, both seasonal and pandemic (UCD 2010). Although almost 95% of Traveller children have received vaccinations at the age of 5, Traveller children are nearly four times as likely to die as infants (children aged under 1) as the settled community. Overall, Traveller mortality is 3.5 times higher than in the settled community (UCD 2010).

Traveller women, much like the Roma women, face the double discrimination of both gender and minority status. Traveller women suffer disproportionally with depression and the level of non-accidental injuries, chiefly through domestic violence, is also very high in Traveller women (Pilson 2011). Pilson argues that a traditionally patriarchal culture persists in the Travelling community at the expense of female autonomy – this is evident in a healthcare setting, where Traveller men may attempt to represent a family or a woman on health issues.

In communities such as the Roma or the Travellers, the barriers to health are many and the overall poor health performance of the communities makes the issue even more urgent. Coordinated efforts from local to EU level are necessary to create an environment where efforts from both health and social areas improve access to health, and health-seeking behaviour. This is especially relevant for the women of these groups. Davidson et al explain that “engaging in strategies to increase educational attainment in women and policies that address violence against women are important in redressing the social and economic inequities that contribute to adverse health outcomes” (Davidson et al 2011, p. 1038). Thus, a multi-pronged approach may address a number of issues at the one time.

Lower socioeconomic status tends to be associated with higher morbidity and mortality rates. Endrich et al (2009) found that social inequalities exist in the context of influenza vaccination; however, this was not true of all 11 European countries analysed in their study. As for gender, they found being male increased the chances of being vaccinated in France, Italy, Spain, UK, Czech Republic, Poland, and Portugal, but did not have any effect in Germany, Austria, Finland and Ireland (Endrich et al 2009).  The various countries in the EU are thus demonstrably not homogenous in their experience in terms of vaccination.

Damiani et al (2007) also highlight the varying results that studies on socioeconomic disparities in influenza vaccination show; some find that certain variables, for example educational level, household income, and age group, influence vaccination rates, while in some findings, they do not. However, regardless of this, Damiani et al argue that an integrated interdisciplinary programme should exist where a systematic surveillance of trends in influenza uptake by socioeconomic groups is implemented: this would allow policy makers to identify trends and barriers limiting equitable uptake of influenza vaccinations.

Lorant et al found in their 2002 study that influenza immunisation in Belgium was less likely between the bottom and third socioeconomic quintile of their sample. This result was reached by adding a variable termed ‘concentration of needs’, which reported that needs are more prevalent in lower socioeconomic groups. They define needs as “…use (health care or prevention) predicted by health status or sex-age group” (Lorant et al, 2002, p. 511), where the health care use or prevention was predicted by health status. By introducing needs into the variables analysed, they found a significant inequity gradient in prevention and health care where ignoring the distribution of needs for preventive care may ultimately conceal inequity in the provision, as needs are concentrated among the less well off. In terms of health seeking behaviours of different socioeconomic groups, Lorant et al (2002) argue that more research needs to be done in the area, and that socioeconomic inequality in prevention can be explained by differences in help seeking, information gathering, and beliefs.



Davidson, P.M., DiGiacomo, M., and McGrath, S.J. (2011) ‘The feminization of aging: how will this impact on health outcomes and services?’ Health Care for Women International, 32(12), 1031-1045.
Damiani, G., Federico, B., Visca, M., Agostini, F., and Ricciardi, W. (2007) ‘The impact of socioeconomic level on influenza vaccination among Italian adults and elderly: A cross-sectional study’, Preventive Medicine, 45(5), 373-379.
Endrich, M.M., Blank, P.R., and Szucs, T.D. (2009) ‘Influenza vaccination uptake and socioeconomic determinants in 11 European countries’, Vaccine, 27(30), 4018-4024.
European Centre for Disease Prevention and Control (2011) Meeting Report – Communicable disease prevention among Roma, Stockholm: ECDC.
European Commission (2010) Vademecum - The 10 Common Basic Principles on Roma Inclusion, Brussels: European Commission.
Fundación Secretariado Gitano Health Area (2009) Health and the Roma Community Analysis of the Situation in Europe Bulgaria, Czech Republic, Greece, Portugal, Romania, Slovakia, Spain, Madrid: Fundación Secretariado Gitano Health Area.
Lorant, V., Boland, B., Humblet, P., and Deliège, D. (2002) ‘Equity in prevention and health care’, Journal of Epidemiology and Community Health, 56(7), 510-516.
Pilson, K. (2011) ‘Cultural competence: an overview of the health needs of the Irish Traveller community’, Royal College of Surgeons in Ireland Student Medical Journal, 4(1), 74-77.
Seale, H., Heywood, A.E., McLaws, M-L., Ward, K.F., Lowbridge, C.P., Van, D., and Raina MacIntyre, C. (2010) ‘Why do I need it? I am not at risk! Public perceptions towards the pandemic (H1N1) 2009 vaccine’, BMC Infectious Diseases, 10(99), 1-9.
University College Dublin, School of Public Health (2010) All Ireland Traveller Health Study Our Geels Summary of Findings, Dublin: UCD, DCU, HSE, DoH, DoH NI.

MMLAP and other EU Projects

Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia
Making society an active participant in water adaptation to global change
Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation
Engaging all of Europe in shaping a desirable and sustainable future
Expect the unexpected and know how to respond
Driving innovation in crisis management for European resilience
Effective communication in outbreak management: development of an evidence-based tool for Europe
Solutions to improve CBRNe resilience
Network for Communicable Disease Control in Southern Europe and Mediterranean Countries
Developing the framework for an epidemic forecast infrastructure
Strengthening of the national surveillance system for communicable diseases
Surveillance of vaccine preventable hepatitis
European monitoring of excess mortality for public health action
European network for highly infectious disease
Dedicated surveillance network for surveillance and control of vaccine preventable diseases in the EU
Modelling the spread of pandemic influenza and strategies for its containment and mitigation
Cost-effectiveness assessment of european influenza human pandemic alert and response strategies
Bridging the gap between science, stakeholders and policy makers
Promotion of immunization for health professionals in Europe
Towards inclusive research programming for sustainable food innovations
Addressing chronic diseases and healthy ageing across the life cycle
Medical ecosystem – personalized event-based surveillance
Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large
Get involved in the responsible marine research and innovation
Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas
Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society
Public Engagement with Research And Research Engagement with Society
Computing Veracity – the Fourth Challenge of Big Data
Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
Promote vaccinations among migrant population in Europe
Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society
Improve the quality of indoor air, keeping it free from radon
Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns
Investigating how cities in the West securitise against global pandemics
Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe
Identifying how children can be change agents in the Science and Society relationship
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