The growing role of Big Data in medicine raises an ethical issue for Responsible Research and Innovation: what about privacy and a possible misuse of such information? During “Shaping the Future of Pediatrics” congress in Rome, ASSET met Alberto Tozzi, Research area coordinator and Head of Digital Medicine and Telemedicine Unit at Ospedale Pediatrico Bambino Gesù, Rome. He suggests that technical solutions can help, but they are not enough, without a cooperation among all the actors (patients, family, hospital, authorities, and so on).
Last January, the scientific journal Nature published a news about scientists who do research funded by the Gates Foundation, who are not allowed to publish their work in those journals that do not comply with the Foundation’s open-access policy. This is the case of important publications such as Nature, Science and the New England Journal of Medicine (NEJM).
“You cannot use old categories to solve new problems”. Piero Bassetti, president of the Giannino Bassetti Foundation, has been one of the pioneers of the idea of Responsible Research and Innovation in Italy. He started talking about these issues many years before they became central in Science-with-and-for-Society policy at a European level. In this interview, he tells us how things have changed ever since.
Public engagement that sets citizens and stakeholders as co-designers and collaborators of R&I activities can contribute to more dynamic and responsible governance of research and innovation. Public Engagement for Research, Practice and Policy conference, to be organized on November 16-17 in Brussels, calls for experts, stakeholders, policy-makers, entrepreneurs, researchers, regional authorities and Commission officials to a joint discussion on this theme.
It is never easy to develop definitions, especially when we are talking about something that is emerging and changing as we speak. This is the case for Responsible Research and Innovation (RRI), an emerging process within European Framework Programs whose definition is new and evolving. However, we can certainly identify a number of key characteristics of RRI, which is an umbrella term including a wide variety of notions, coming from the academia and politics.
On September 17, 2015, the NEN (Netherlands Standardization Institute) will host the workshop ‘Ethical Impact Assessment for Research and Innovation’. The Workshop is organized by the SATORI project and will assess the feasibility of European consensus for such a framework.
