• October 16, 2017

    The internet and social media era is both a great and a hard time to be an empowered patient or citizen. Every day everyone is overwhelmed by information, but also by misinformation. Discerning between the two is not so easy, according to Dennis Costello, Web Communications Senior Manager & RareConnect Leader at EURORDIS (Rare Diseases Europe). Best practices should be adopted by creators of contents and technical tools can further help in selecting them, but patients’ and consumers’ associations have a leading role in this, guiding the public so that they can make better decisions for themselves and their family.

  • October 11, 2017

    The growing role of Big Data in medicine raises an ethical issue for Responsible Research and Innovation: what about privacy and a possible misuse of such information? During “Shaping the Future of Pediatrics” congress in Rome, ASSET met Alberto Tozzi, Research area coordinator and Head of Digital Medicine and Telemedicine Unit at Ospedale Pediatrico Bambino Gesù, Rome. He suggests that technical solutions can help, but they are not enough, without a cooperation among all the actors (patients, family, hospital, authorities, and so on).

  • May 13, 2017

    Mandatory vaccinations for both healthcare workers and the public can obtain a rapid improvement in immunization rates, but in the end have high cost, especially in term of litigation. The same results can be achieved putting resources into better organization and communication programs. This is the opinion of Darina O’Flanagan, previous Director of Health Protection Surveillance Centre Ireland and a member of the Advisory Forum of the European Centre for Disease Control since its inception in 2005 up to 2016. She was also one of the founder partners of the European Vaccine Network VENICE and is participating to Pandem project, on behalf of the WHO Regional Office for Europe.

  • February 1, 2017

    Most emerging diseases come from animals (zoonosis). Therefore, surveillance needs to keep an eye on viruses and other microorganisms that could be transmitted to humans, acquiring the capability to spread among people. Ilaria Capua, director of the One Health Excellence Centre at the Emerging Pathogens Institute of the University of Florida, USA, recommends not letting our guard down.

  • October 24, 2016

    While USA recommend universal flu vaccination for 6 months age, some European countries have different strategies, targeting only children with chronic diseases. Susanna Esposito, professor of Paediatrics at the University of Milan, Italy and president of WAIDID (World Association for Infectious Diseases) advocates for a wider coverage against influenza in healthy children as well.

Gender Platform

Best Practice Platform

Gender Platform

Best Practice Platform

“Public health surveillance is the bedrock of outbreak and epidemic response”. With these words, Marie-Paule Kieny – WHO Assistant Director-General for Health Systems and Innovation – introduces the WHO guidelines on ethical issues in public health surveillance, a document targeted to a wide range of stakeholders involved in the constant monitoring of health threats.

Persons over the age of 65 have a higher risk for severe influenza-related complications and have the highest risk of mortality from influenza. Vaccination of older persons have traditionally been the main focus of influenza vaccine policy, and while vaccines are not as efficient in this population as in younger adults, it still remains the most effective public health tool to protect against influenza (WHO 2012). Vaccination recommendations vary slightly between countries in Europe, however almost all cover older people as a specific target group (Endrich et al 2009).

The debate on how to address the spread of incorrect information about vaccines and science in general, as never before, is affecting the main stakeholders in health and scientific communication.
Current vaccination campaigns aimed to address vaccine hesitancy do not work or do not work enough.

Work Packages

Dialogue & Participation
Study & Analysis
Action Plan Definition
Citizen Consultation
Mobilization and Mutual Learning
Policy Watch
Communication
Evaluation
Legacy
Management

Partners

MMLAP and other EU Projects

Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia
Making society an active participant in water adaptation to global change
Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation
Effective communication in outbreak management: development of an evidence-based tool for Europe
Developing the framework for an epidemic forecast infrastructure
European monitoring of excess mortality for public health action
Modelling the spread of pandemic influenza and strategies for its containment and mitigation
Cost-effectiveness assessment of european influenza human pandemic alert and response strategies
Bridging the gap between science, stakeholders and policy makers
Promotion of immunization for health professionals in Europe
Towards inclusive research programming for sustainable food innovations
Medical ecosystem – personalized event-based surveillance
Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large
Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas
Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society
Public Engagement with Research And Research Engagement with Society
Computing Veracity – the Fourth Challenge of Big Data
Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society
Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns
Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe
Identifying how children can be change agents in the Science and Society relationship
Establishing an open dialogue between stakeholders concerning synthetic biology’s potential benefits and risks
Transparent communication in Epidemics: Learning Lessons from experience, delivering effective Messages, providing Evidence