Government and Public Health

October 16, 2017

The internet and social media era is both a great and a hard time to be an empowered patient or citizen. Every day everyone is overwhelmed by information, but also by misinformation. Discerning between the two is not so easy, according to Dennis Costello, Web Communications Senior Manager & RareConnect Leader at EURORDIS (Rare Diseases Europe). Best practices should be adopted by creators of contents and technical tools can further help in selecting them, but patients’ and consumers’ associations have a leading role in this, guiding the public so that they can make better decisions for themselves and their family.

October 11, 2017

The growing role of Big Data in medicine raises an ethical issue for Responsible Research and Innovation: what about privacy and a possible misuse of such information? During “Shaping the Future of Pediatrics” congress in Rome, ASSET met Alberto Tozzi, Research area coordinator and Head of Digital Medicine and Telemedicine Unit at Ospedale Pediatrico Bambino Gesù, Rome. He suggests that technical solutions can help, but they are not enough, without a cooperation among all the actors (patients, family, hospital, authorities, and so on).

Topic: 

“Public health surveillance is the bedrock of outbreak and epidemic response”. With these words, Marie-Paule Kieny – WHO Assistant Director-General for Health Systems and Innovation – introduces the WHO guidelines on ethical issues in public health surveillance, a document targeted to a wide range of stakeholders involved in the constant monitoring of health threats.

Del Vicario M, Bessi A, Zollo F, Petroni F, Scala A, Caldarelli G, et al. Proc Natl Acad Sci U S A. 2016 Jan 19;113(3):554-9.

WHO. 2014. Evaluation of seasonal influenza vaccination policies and coverage in the WHO European Region. Results from the 2008/2009 and
2009/2010 influenza seasons Based on a joint VENICE–ECDC–WHO survey.

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MMLAP and other EU Projects

Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia
Making society an active participant in water adaptation to global change
Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation
Effective communication in outbreak management: development of an evidence-based tool for Europe
Developing the framework for an epidemic forecast infrastructure
European monitoring of excess mortality for public health action
Modelling the spread of pandemic influenza and strategies for its containment and mitigation
Cost-effectiveness assessment of european influenza human pandemic alert and response strategies
Bridging the gap between science, stakeholders and policy makers
Promotion of immunization for health professionals in Europe
Towards inclusive research programming for sustainable food innovations
Medical ecosystem – personalized event-based surveillance
Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large
Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas
Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society
Public Engagement with Research And Research Engagement with Society
Computing Veracity – the Fourth Challenge of Big Data
Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society
Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns
Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe
Identifying how children can be change agents in the Science and Society relationship
Establishing an open dialogue between stakeholders concerning synthetic biology’s potential benefits and risks
Transparent communication in Epidemics: Learning Lessons from experience, delivering effective Messages, providing Evidence