EUPATI, European Patients’ Academy on Therapeutic Innovation, is a patient-led initiative that uses training courses, educational material and an online public library for empowering patients to engage more effectively in the development and approval of new treatments and become true partners in pharmaceutical research and development. Filippo Buccella, chairman of the Italian Liaison Team explains to ASSET how this initiative can involve healthy citizens as well, improving preparedness to infectious outbreaks and other crises.
Social media, mobile technology and social networks constitute an extremely rich and dynamic information ecosystem. With a world population of more than seven billion people, almost half of them have an internet connection, while the active social media users are about 2.8 billion. Huge numbers, which clearly shows how deep these instruments are rooted into our society. It is not a surprise, then, that social media are also increasingly present in disaster and crisis response efforts. Their growing presence in these scenarios represent an issue, but also an opportunity.
The fact that some vaccine preventable diseases have disappeared or are very rare following these vaccination programs can lead to parents believing there is no more need to vaccinate. Therefore, it is of huge importance that events like the European Immunization, helping maintain vaccination awareness and giving accurate and understandable information on immunization, exist. In this way, public confidence in immunization is less susceptible to be influenced by groups, websites or campaigns against vaccination. By acknowledging that every child deserves a healthy start in life, countries can use the European Immunization Week to increase awareness of the importance of immunization and to strengthen their immunization systems.
Immunization rates in Italy are decreasing at a worrying trend: international targets for measles eradication and safety thresholds in childhood vaccination are vanishing. Authorities, doctors and families are concerned that a coverage below 86% for MPR (measles, parotitis and rubella) vaccine can impair herd immunity, putting younger babies, immunocompromised people and not-responders at risk.
Parents, healthcare workers, bloggers and science communicators have launched a positive experience in Italy, with the aim of sharing and promoting scientific information towards an important public health goal: to face the drop in vaccine coverage.
Public engagement that sets citizens and stakeholders as co-designers and collaborators of R&I activities can contribute to more dynamic and responsible governance of research and innovation. Public Engagement for Research, Practice and Policy conference, to be organized on November 16-17 in Brussels, calls for experts, stakeholders, policy-makers, entrepreneurs, researchers, regional authorities and Commission officials to a joint discussion on this theme.
“We are so close to ending the polio” and “Still 15 years to a polio-free world” are not contradictory statements. They instead describe, with different degree of optimism, the current framework and the objective to be pursued in the fight against this disease. In other words, we are closer than ever to the target of a world free of polio, but much remains to be done to carry the world across the threshold. Polio eradication is the next issue public health authorities will be committed to in midterm future.
