Features

Not differently from many other mothers, I actually started to delve into the world of vaccines when my first daughter was born. Before that, I only have old and indistinct memories about vaccines as one of the several youth’s unavoidable steps. After discussing in forums with other parents – before the advent of social network – I realized that what I used to dismiss as a non-relevant matter, was indeed a topic able to ignite passionate discussions, with data-quoting attacks and mutual excommunications on either side of the barricade.

For a country, being ready to face an infectious disease outbreak requires, among other things, the capability to reach and involve all the components of the society. Especially those that are more exposed to health threats due to low quality housing, poor nutrition, lack of parental education and weak links to health services, as it happened in the 2010 measles epidemic in Bulgaria, where 90% of recorded cases occurred within the so-called Roma community.

Science is getting out of laboratories and reaching the general public. That is, we are moving from the only goal of bringing Science-in-society, adding that of bringing Society-in-science: for years researchers have been blamed for living in their ivory towers, and asked to learn how to talk to common people, explaining their work and influencing policies and behaviours; now common people are stepping into science, giving their own support to a common cause.

Communication is not merely a matter of passing information from one person to another. Just as important as the message itself is how the message is formulated, and who are the parties involved.  This is particularly true in case of an infectious diseases outbreak, when proper risk communication can really make the difference in terms of number of lives saved.

On June 3rd, the European Commission rejected the Stop Vivisection Initiative, which asked  to abrogate Directive 2010/63/EU1 on the protection of animals used for scientific purposes and to put forward a new proposal aimed at phasing out the practice of animal experimentation, making compulsory the use - in biomedical and toxicological research - of data directly relevant for the human species.

The report published in March 2015 by Medecins sans frontières speaks out clearly against the “global coalition of inaction” and the “vacuum of leadership” in the Ebola crisis in West Africa. Those who were struggling in the field against a huge and out-of-control emergency, without the necessary resources, list the main causes of such a situation: lack of political will, inexperience, and, sometimes, simply fear.

Undoubtedly, epidemics and pandemics are good examples of extraordinary circumstances that may require extraordinary measures. Such exceptionality, however, should not provide an alibi for pandemic planners and policy makers to ignore fundamental human rights. This is why ethics should always be a key element to be considered when planning a proper response to such global health threats.

The beginning of the European Immunization Week, which will be followed in a few days by the World Immunization Week, is a perfect chance to remind the importance of vaccination and immunization programme. Among the several initiatives to keep the attention high on such a topic, one involved even the Lego group. Lego ideas is a website developed by the famous Danish toy company where fans may share ideas and proposals for new Lego set. The website allows everyone to post an idea and to gather support.

Viruses and bacteria are not the only ones to spread during an epidemic. Rumours and misinformation can do that too, eventually leading to the constitution of a parallel information system that could undermine the efficacy of the institutional communication. Similar situations often arise in case of contested knowledge or when only few highly technical experts are left dealing with scientific information.

Many experts talk about pandemics and about the importance of preparedness but, based on the previous experience with the 2009 A(H1N1) swine flu, the issue of what a pandemic is and when it has to be declared is still under debate.

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MMLAP and other EU Projects

Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia
Making society an active participant in water adaptation to global change
Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation
Engaging all of Europe in shaping a desirable and sustainable future
Expect the unexpected and know how to respond
Driving innovation in crisis management for European resilience
Effective communication in outbreak management: development of an evidence-based tool for Europe
Solutions to improve CBRNe resilience
Network for Communicable Disease Control in Southern Europe and Mediterranean Countries
Developing the framework for an epidemic forecast infrastructure
Strengthening of the national surveillance system for communicable diseases
Surveillance of vaccine preventable hepatitis
European monitoring of excess mortality for public health action
European network for highly infectious disease
Dedicated surveillance network for surveillance and control of vaccine preventable diseases in the EU
Modelling the spread of pandemic influenza and strategies for its containment and mitigation
Cost-effectiveness assessment of european influenza human pandemic alert and response strategies
Bridging the gap between science, stakeholders and policy makers
Promotion of immunization for health professionals in Europe
Towards inclusive research programming for sustainable food innovations
Addressing chronic diseases and healthy ageing across the life cycle
Medical ecosystem – personalized event-based surveillance
Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large
Get involved in the responsible marine research and innovation
Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas
Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society
Public Engagement with Research And Research Engagement with Society
Computing Veracity – the Fourth Challenge of Big Data
Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
Promote vaccinations among migrant population in Europe
Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society
Improve the quality of indoor air, keeping it free from radon
Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns
Investigating how cities in the West securitise against global pandemics
Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe
Identifying how children can be change agents in the Science and Society relationship
Establishing an open dialogue between stakeholders concerning synthetic biology’s potential benefits and risks
Transparent communication in Epidemics: Learning Lessons from experience, delivering effective Messages, providing Evidence