Citizens

Women who are pregnant are more likely to have severe disease and hospitalisation with either seasonal or pandemic influenza, compared to the general population or compared to non-pregnant women of the same age group. During pandemics, the mortality rate for pregnant women is higher than non-pregnant women. However, this is not the case with seasonal influenza unless the strain is particularly severe (WHO 2010).

October 24, 2017

EUPATI, European Patients’ Academy on Therapeutic Innovation, is a patient-led initiative that uses training courses, educational material and an online public library for empowering patients to engage more effectively in the development and approval of new treatments and become true partners in pharmaceutical research and development. Filippo Buccella, chairman of the Italian Liaison Team explains to ASSET how this initiative can involve healthy citizens as well, improving preparedness to infectious outbreaks and other crises.

October 16, 2017

The internet and social media era is both a great and a hard time to be an empowered patient or citizen. Every day everyone is overwhelmed by information, but also by misinformation. Discerning between the two is not so easy, according to Dennis Costello, Web Communications Senior Manager & RareConnect Leader at EURORDIS (Rare Diseases Europe). Best practices should be adopted by creators of contents and technical tools can further help in selecting them, but patients’ and consumers’ associations have a leading role in this, guiding the public so that they can make better decisions for themselves and their family.

This editorial introduces the new release of ASSET paper series.

Social media, mobile technology and social networks constitute an extremely rich and dynamic information ecosystem. With a world population of more than seven billion people, almost half of them have an internet connection, while the active social media users are about 2.8 billion. Huge numbers, which clearly shows how deep these instruments are rooted into our society. It is not a surprise, then, that social media are also increasingly present in disaster and crisis response efforts. Their growing presence in these scenarios represent an issue, but also an opportunity.

As a part of the ASSET project, the European Institute of Women’s Health were tasked with liaising with local schools to disseminate the activities of the ASSET project. The schools were to have received funding under the Erasmus Plus programme, which is the programme that combines all the EU’s current schemes for education, training, youth and sport in Europe.

Some things just do not want to die. In public health, anti-vaccination movements keep sizzling debates, just as they did in the XIX century. At the same time,  the “deficit model” of science communication – the myth that the “public” is just ignorant and that it would support science, if spoon-fed information from the ivory tower – still haunts the relationship between health, science and the community, despite having been repeatedly debunked. The two zombies are more related than one could believe. Vaccine hesitancy and anti-vaccination movements grow in the cracks between trust and knowledge, and these are the fault lines that communication should heal – or rip apart, if it fails.

​Abraham T. Eur J Public Health. 2013 Oct 1;23(1).

Post SARS, the WHO and other organizations charged with public health in different parts of the world began to focus on the task of refining emergency risk communication strategies and principles. Based on the experience of communication during SARS, as well as earlier infectious diseases such as Nipah and Ebola, the WHO identified five critical best practices for effective outbreak communication.

Link to full text

During the period between October and December 2016, we used our algorithm to find out the most relevant Twitter influencers about vaccines. We performed a multilevel study to categorize the accounts and to identify the most relevant hashtags.

We analysed 869 accounts and categorized 373 of them:

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Health system analysis to support capacity development in response to the threat of pandemic influenza in Asia
Making society an active participant in water adaptation to global change
Public Participation in Developing a Common Framework for Assessment and Management of Sustainable Innovation
Engaging all of Europe in shaping a desirable and sustainable future
Expect the unexpected and know how to respond
Driving innovation in crisis management for European resilience
Effective communication in outbreak management: development of an evidence-based tool for Europe
Solutions to improve CBRNe resilience
Network for Communicable Disease Control in Southern Europe and Mediterranean Countries
Developing the framework for an epidemic forecast infrastructure
Strengthening of the national surveillance system for communicable diseases
Surveillance of vaccine preventable hepatitis
European monitoring of excess mortality for public health action
European network for highly infectious disease
Dedicated surveillance network for surveillance and control of vaccine preventable diseases in the EU
Modelling the spread of pandemic influenza and strategies for its containment and mitigation
Cost-effectiveness assessment of european influenza human pandemic alert and response strategies
Bridging the gap between science, stakeholders and policy makers
Promotion of immunization for health professionals in Europe
Towards inclusive research programming for sustainable food innovations
Addressing chronic diseases and healthy ageing across the life cycle
Medical ecosystem – personalized event-based surveillance
Studying the many and varied economic, social, legal and ethical aspects of the recent developments on the Internet, and their consequences for the individual and society at large
Get involved in the responsible marine research and innovation
Knowledge-based policy-making on issues involving science, technology and innovation, mainly based upon the practices in Parliamentary Technology Assessment
Assessment of the current pandemic preparedness and response tools, systems and practice at national, EU and global level in priority areas
Analysis of innovative public engagement tools and instruments for dynamic governance in the field of Science in Society
Public Engagement with Research And Research Engagement with Society
Computing Veracity – the Fourth Challenge of Big Data
Providing infrastructure, co-ordination and integration of existing clinical research networks on epidemics and pandemics
Promote vaccinations among migrant population in Europe
Creating mechanisms for effectively tackling the scientific and technology related challenges faced by society
Improve the quality of indoor air, keeping it free from radon
Improving respect of ethics principles and laws in research and innovation, in line with the evolution of technologies and societal concerns
Investigating how cities in the West securitise against global pandemics
Creating a structured dialogue and mutual learning with citizens and urban actors by setting up National Networks in 10 countries across Europe
Identifying how children can be change agents in the Science and Society relationship
Establishing an open dialogue between stakeholders concerning synthetic biology’s potential benefits and risks
Transparent communication in Epidemics: Learning Lessons from experience, delivering effective Messages, providing Evidence